A Tourette Syndrome Parent Observation Worksheet and Check Off List to Help Prepare for your Doctor Visit
Parent Observation Worksheet
By Susan Conners, M. Ed
When a parent is faced with the often daunting task of taking their child to the doctor for an evaluation/diagnosis of Tourette Syndrome (TS), they often feel inadequate to discuss what symptoms/behaviors they have been observing that might relate to Tourette. They also may know very little about Tourette, especially the associated disorders that frequently accompany the syndrome.
Tourette Syndrome is now commonly referred to as a neurodevelopment spectrum disorder. In other words, Tourette is much more than just the tics. While the tics are necessary for a diagnosis, they are often just the of the iceberg.
The Tourette Alliance has created an observation worksheet and checklist for parents to fill out prior to an appointment to help in preparation for the visit. Encompassing motor and vocal tics as well as all of the associated disorders, this checklist will aid in maximizing the time spent with the child’s doctor.
Below is a list of the five criteria necessary for a diagnosis of Tourette Syndrome along with a list of the commonly occurring comorbid disorders.
Criteria for a diagnosis of Tourette Syndrome:
- Multiple Motor Tics
- At Least One Vocal Tic in the Course of the Disorder
- Waxing and Waning of Symptoms (Tics change frequently in nature and severity)
- Childhood Onset Sometime Between the Ages of 2 and 18
- Symptoms for at Least a Year
Tourette Syndrome – a Neurodevelopmental Spectrum Disorder:
Attention Deficit Disorder (ADD)
Social Skills Deficit
Attention Deficit Hyperactivity Disorder (ADHD)
Obsessive Compulsive Disorder (OCD)
Auditory Processing Disorder (APD)
Anxiety Disorders/ Phobias
Sensory Processing Disorder
Autism Spectrum Disorder (APD)
Eye Tracking Problems
Handwriting Issues (Dysgraphia)
Please Download the Worksheet at the Link Below:
We hope that this observation worksheet and checklist is useful in helping you prepare for your doctor visits and also help you and the treating doctor better understand this complex disorder. Please visit our website at TouretteAlliance.org for many more useful brochures and articles for families as well as educational personnel and please feel free to contact us anytime for further assistance.
*The Tourette Alliance strongly urges you to bring an extra copy of the worksheet with you to leave with the doctor for their perusal.