Members of the Advisory Board of the Tourette Alliance Have the Following Responsibilities:

  • Serve in an advisory capacity by responding to occasional questions from the Tourette Alliance Board of Directors and its members of a medical, scientific, educational or other specific nature within their area of expertise.
  • Consult and network with members of the public, educators, clinicians or others within their specific area of expertise about the Tourette Alliance, its Mission and on Tourette Syndrome.
  • Attend (in person or by conference call) one meeting per year of the Advisory Board and the Board of Directors.
  • Be available to speak to the Tourette Alliance Membership either in person or by Skype, Webinar or other means of technology at least once a year.
  • Support and Advise the Board of Directors to make decisions that will benefit the Tourette Alliance and its members.
  • Share up-to-date information with the Tourette Alliance Board of Directors that they feel will benefit the Tourette Alliance, its mission and members.
  • Assist with the development of a Resource Library by sharing information packs about their area of expertise and ensuring the information supplied by the Tourette Alliance to its Membership is accurate and up-to-date.To find out how you can become a member of the Tourette Alliance Advisory Board and help make a difference in your community please contact Suzanne Lavery at suzanne@tourettealliance.org

We are grateful to the following Advisory Board members for their hard work and dedication to the mission of Tourette Alliance.

 


 

Dr. Dierdre Peake, Medical Advisor, Neurology

Dr. Dierdre Peake, a neurology consultant at Royal Belfast Hospital for Sick Children, Belfast, is the Chair and founder of the Northern Ireland Epilepsy Forum and runs a joint tertiary Tourette/Tic Clinic with Dr. Mark Rodgers, a consultant Psychiatrist.

Dr. Peake is also a Council member of BPNA ( British Paediatric Neurology Association), Deanery advisor for training in Paediatric Neurology in Northern Ireland, Research and audit departmental lead in Paediatric Neurology In RBHSC Neurology Department, the Ireland Lead for the Paediatric Epilepsy Training ( PET) courses for the BPNA, is the Neurology Network Lead for Northern Ireland, and is involved in developing epilepsy surgery network services.


 

Cathy L. Budman, MD, Medical Advisor, Psychiatry

Cathy L. Budman, MD is the Director of the National Tourette Center of Excellence, Northwell Health, a member of the New York State Centers of Excellence for Tourette Consortium
Director, Movement Disorders Program in Psychiatry, North Shore University Hospital and Professor of Psychiatry, Hofstra Northwell School of Medicine.

Dr. Budman completed her undergraduate Sc.B in Biology cum laude at Brown University. She earned her Medical Doctorate at the State University of New York at Buffalo Jacobs School of Medicine and Biomedical Sciences. Dr. Budman completed her internship and second year of residency at the University of California at San Francisco School of Medicine and Langley Porter Psychiatric Institute before spending three years living and working in Sydney, Australia as a Registrar in Alcohol and Substance Abuse at the Royal Prince Alfred Hospital. After returning to the United States, Dr. Budman completed her adult psychiatry residency and neuropsychiatry fellowship training at North Shore University Hospital Cornell Medical College.

Cathy L. Budman, MD is a board certified psychiatrist, Professor of Psychiatry at the Hofstra Northwell School of Medicine, and an internationally acclaimed specialist in Tourette Syndrome and its commonly occurring disorders. Dr. Budman is the Director of the National Tourette Center of Excellence at Northwell Health and a founding member of the New York State Centers of Excellence for Tourette Consortium.

Dr. Budman has been working with children, adults, and families affected by Tourette and its commonly co-occurring conditions for over twenty five years. She is also a clinical research investigator studying novel treatments for tics and related phenomenology. Dr. Budman has lectured to both professional and lay audiences worldwide, is involved in national and international research collaborations, and has published extensively in the field. She served on the National Medical Advisory Board for the Tourette Association of America for many years, continues to serve on the Medical Advisory Boards for Long Island Tourette Association and CHADD, and as an expert consultant. Dr. Budman has received numerous awards and professional recognition including the Castle Connolly Best Doctors in America award, nomination by U.S. News & World Report as a Top Doctor, and an Outstanding Contributions and Services award from the Tourette Association of America. Dr. Budman’s professional memberships include the American Psychiatric Association, American Medical Women’s Association, Tourette Syndrome International Consortium for Genetics (TSAICG), Psychiatry Genomics Association (PSG), Tourette Association of America Clinical Trials Consortium, and a speaker with the Tourette Association of American-Center for Disease Control Partnership.

 


 


Kathryn Stevenson, Children’s Special Education Rights Advisor:

Kathryn Stevenson was called to the Roll of Solicitors in Northern Ireland in 1997.  She worked in private practice for 3 years and developed a special interest in the areas of Child and Family Law before joining the Children’s Law Centre in Belfast in 2000.   Kathryn commenced employment with CLC as a Solicitor specialising in Education and has acquired expert knowledge of law, policy and practice relating to education in Northern Ireland.  In 2009, she was appointed Head of Legal Services, responsible for the operational management and strategic direction of CLC’s in-house legal team, which provides legal advice and representation for and on behalf of children at education, special educational needs and mental health tribunals and undertakes strategic litigation to vindicate children’s rights, principally High Court Judicial Reviews.

Since 2007, Kathryn has represented the Voluntary Children’s Sector on The Children’s Order Advisory Committee (COAC).  She is also a longstanding member of the Children with Disabilities Strategic Alliance and is Co-Chair of the Joint Consultative Forum for the Education Sector.


 

Dr. Clare Caughey, Educational Psychology Advisor

Dr Clare Caughey is an educational psychologist (registered with the HCPC) and special needs teacher and founder of SENsations Learning Support which provides affordable access to psychology for parents of children and young people in Northern Ireland.

She works with children and adolescents up to age 18 from all types of backgrounds and schools. Having worked with children who attend mainstream schools, as well as specialist environments for pupils with Moderate, Severe or Profound Learning Difficulties. Including Autism, Dyslexia, ADHD, and behaviour problems, she has over 10 years of experience working with a wide range of children and young people.


W. Scott Pinkston , Tourette Alliance Fundraising AdvisorW. Scott Pinkston, Fundraising Advisor:

Scott is Development Manager for the King County Bar Foundation in Seattle, Washington, which provides funding for minority student scholarships at two area law schools, as well as pro bono civil legal aid services to the poor. Scott has over 15 years experience in fundraising, donor and constituent relations and event planning–much of it in the higher education sector. A graduate of the University of Kansas, Scott is also an occasional mountaineer, actor, writer and artist who lives in Tacoma, Washington. He is honored to play a role in the formation of the Tourette Alliance and its certain future success.


Sandra McHugh,  Advisor to the South

Residing in Louth, mom of two boys, one of whom has Tourette Syndrome and co-occurring conditions, Sandra is a passionate advocate. She’s spent years helping other families in the Republic of Ireland find information about this misunderstood condition through her involvement in the Tourette Alliance Belfast Support group and its previous gatherings. She will continue to keen helping the Tourette Alliance find ways to support to our Southern Families.


Jessamine Daly-Griffen, Parent Advisor

Author, lecturer and advocate Jessamine Daly-Griffen has three amazing children, two of whom who have Tourette Syndrome and co-occurring conditions. With a background in elementary education, Jessamine has spent several years as a camp counselor at Camp Ticapalooza in New York State and traveling to deliver lectures and workshops on living with Tourette. Her experiences have been invaluable in her vocation as an advocate for families impacted by Tourette Syndrome.


Connor Harrington, Youth Advisor

Connor Harrington found his passion for advocacy for those with disabilities at a young age. At 17, he’s travelled internationally to speak to others about this often misunderstood disorder. After several years of speaking to his peers with Tourette Syndrome and public talks about TS and it’s associated conditions, Connor was appointed as a Tourette Association of America Youth Ambassador in 2016. He’s since worked to lobby for researching, funding and anti-bullying programs and has met with Congressmen, Senators, Educators, Clinicians and more to further awareness and acceptance for those with Tourette. Connor is the founder of the Tourette Alliance Youth Representative and Peer Mentoring Programs.

 

 


 

Tamara Dourney, IT & Social Media Advisor